2022 marks my 10-year journey with multiple sclerosis, a rare autoimmune disease. In this time, I’ve learned 10 valuable lessons that I hope can help you too.
“I don’t think I’m strong enough,” I told Andy between tears because between the symptoms and doctor visits and tests, the thought of being diagnosed with a second disease was shattering.
I started my health journey terrified of what the future held. Now, here I am — in the ‘future’ from when I was diagnosed — and I have come to learn that a “no news” type of health-lifestyle is exactly what I want.
To say there is a virus, that decisions are made that do not make the most sense, that the world seems to be crumbling around us, and that life is hard — sure, we are all experiencing this. However, if we pause to focus on the positives, there are also parts of life that are super rewarding, incredibly beautiful and these are the parts I’m holding onto.
I thought about much as the machine breathed beside me and my infusion medication dripped into my arm, and I realized that I’m actually living a better life than I ever have, that I’m lucky, that MS has opened my eyes.
Both halves of my first dose of Ocrevus, my new MS infusion medication, are finished. Here’s more about that . . .
We made my first multiple sclerosis infusion be a celebration of sorts and once it was done, I realized there is power in positivity.
Since determining I would be moving onto new Medication Number Three, I have been busy preparing my body for Ocrevus — my first infusion-based multiple sclerosis medication.
On to a decision, on to Disease-Modifying Treatment Number Three: Ocrevus, an infusion medication.
Maybe this is the news I needed to shake me out of my own safety net. Maybe I needed to hear this to stop holding myself back. Maybe — in some warped way — MS will free me.
Exciting news to share: I wrote a piece about multiple sclerosis that was recently published online!
Life is fleeting and unexpected and turbulent at times so while it is calm, while it is good, let’s celebrate.
Mirrors show what we will call our imperfections, our flaws. Mirrors allow us a way to look — face-forward — at the truth, to examine ourselves, to witness ourselves change. So my mirror — Is that the truth? Or is that showing the truth of what I fear? Or is there even a difference?
Lots of multiple sclerosis updates here including how I like my new neurologist, steroid treatments, my amusing and highly drugged MRI visit, and which medication I decided . . .
I guess what I’m saying is for the first time since being diagnosed, I really want to know the answer to one question: Why?